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BBMRI-ERIC ELSI Common Service and Applying Privacy Rights as well as rights to medical treatment for large cohorts

Mats Hansson
TrackConference
DescriptionThe ELSI Common Service of the European infrastructure BBMRI-ERIC officially started 1 February. Regarding their ethical, legal and social aspects to consider, this ELSI-CS aims to facilitate and support cross- border exchanges of human biological resources and data attached for research uses, collaborations and sharing of knowledge, experiences and best practices among Member States. This will be done in full respect of the Charter of the Fundamental Rights of the EU, with the aim of promoting excellence in international biobank-based research. The charter lays down rights both to privacy and medical treatment and I will suggest how these should be balanced in large cohorts using personal data and biological samples

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